CRUK - Cancer Research UK

Time Limits

 

  • Cancer Research UK expects data to be released no later than the acceptance for publication of the main findings from the final dataset (unless restrictions from third party agreements or IP protection still apply) or on a timescale in line with the procedures of the relevant research area.
  • Cancer Research UK expects that data be preserved and available for sharing with the science community for a minimum period of five years following the end of a research grant.
  •  An electronic copy of the final research must be deposited in the UKPMC database within 6 months after publication. 

 Data Management Plan

  • YES.  All applicants must submit a data sharing plan as part of their research grant proposal. If data sharing is not appropriate, applicants must include a clear explanation why.
  • For further information on the policy and how to complete the 'Data Management and Sharing' section of your funding application please view CRUK's Data Sharing Guidelines.
  • The following should be considered when developing a data sharing plan:
    • The volume, type, content and format of the final dataset
    • The standards that will be utilised for data collection and management
    • The metadata, documentation or other supporting material that should accompany the data for it to be interpreted correctly
    • The method used to share data
    • The timescale for public release of data
    • The long-term preservation plan for the dataset
    • Whether a data sharing agreement will be required
    • Any reasons why there may be restrictions on data sharing, for example
    • Development arrangements through Cancer Research Technology including intellectual property protection and commercialisation
    • Proprietary Data – restrictions due to collaborations with for profit organisations
    • International policies governing the sharing of data collected outside of the UK
    • Confidentiality, ethical or consent issues that may arise with the use of data involving human subjects.

Access/Data Sharing

  • Data  generated as a result of its funding be considered for sharing and made as widely and freely accessible as possible whilst safeguarding intellectual property, the privacy of patients and confidential data.
  • Cancer Research UK funded researchers must deposit in the UKPMC database an electronic copy of the author’s final version of papers accepted for publication. This should happen as soon as possible and no later than 6 months after publication. 

Policy:

  • Also:  ‘Data Standards’ for Cancer Research data to ensure technology does not render data obsolete:  The Cancer InfoMatrix (CIM) provides information about work being conducted to support good data management in cancer research through the development of data standards.  See http://www.ncri.org.uk/default.asp?s=1&p=8&ss=1 for more information.